Tuesday, September 25, 2012

Lots of Firsts

We have had lots of firsts over the past few days.

1.  I changed my first poopy diaper on Monday.  I have to admit, it was pretty gross.  But I am so glad for her poopy diapers because it means her bowels are functioning!

2.  Lorena is now wearing clothes.   I have learned not to get my hopes up about her condition because she will take each step in her own time.  Therefore, I assumed it would be a month before she could be dressed.   It was quite shocking when I got to her room on Monday and she was in a onesie.  The clothes have special snaps to make room for her IVs and cords but it makes her look more like a "normal" baby.

Cuddled up in her onesie

3.  The nurses have started to "window" Lorena.  Windowing is when the CPAP is removed for one hour and a different breathing support is placed in her nostrils.  It looks more like the normal prongs you see on people that wear oxygen during the day.  This breathing apparatus gives less support than the CPAP machine.  I held her for an hour when she was windowing and she didn't have any desaturatations...meaning she did excellent.  The doctors decided to do 2 windowing episodes today (Tuesday) since she did so well on Monday. Picture below has the new apparatus in her nostrils.

Staring at Mommy

4.   I am back at work for the first time since I had Lorena. I hadn't been in my company truck for several weeks and I was saddened to realize that my XM radio 6 month free subcription had expired. I guess I will have to listen to normal radio again.  It is also hard to make much progress in a day when I'm pumping every 2 1/2 hours.  I'm really glad that there aren't many people on the roads in Central KS!   And of course I had to show pictures of Lorena to every farmer I visited.  It felt good to be busy.
  
Resting peacefully with her pacifier

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